Everybody's Fond Of These Two!
The Odd Normal
Wherever You Go!
Letters From A Broad
Oh Well...
Gecko's Page of Musings
Merry Christmas and a safe Happy New Year!
It is funny how on any given day the same things can be perceived differently. Or maybe even the way you say something communicates something other than you intended. Life is pretty simple; if you are willing to view it that way...in full pursuit of making the best of whatever it gives you.
"Within a few minutes I went from scared, frustrated to excited and creative. A part of me was paying attention to the road, and a part of me was writing this blog. I began to think about how much our attitudes play into survival."
Image by Lisa Sweet..." The images I create express somewhat logical conclusions to my own absurd dreams both asleep and awake...."
Shardai is an eighth grader at Smyrna Middle School. She is an Honor Roll student who also plays percussion in the band, volunteers as an office worker, and helps to manage the cheerleading squad. She has been seen volunteering in several activities in her school and her community; she is eager to do anything she can to help others. But, Shardais excellent academic performance, impressive extracurricular involvement, and servant heart are not the only characteristics that make her noticeable.
Her Story...Since birth, Shardai has suffered from a rare skin disorder called Epidermolysis Bullosa that creates very painful, blister-like sores over her entire body. At the age of five, Shardai was also diagnosed with Polymosytis, a muscle deterioration disorder, that aggravates her ability to manage the skin disorder. In addition, Shardai has a gum disorder that causes her gums to swell considerably and requires that she undergo gum reduction surgery on a yearly basis. Shardais skin disorder is to blame for the excruciating pain she must face each and every day of her life. She also must spend quite a bit of time each morning wrapping her skin in medicated wraps and gauze to protect from infection and try to allow her sores to heal. She must also undergo very painful, lengthy medical procedures on a regular basis to treat her skin. See her pictures.